The Nature of Science

Showing posts with label Ethics. Show all posts

Udo Schüklenk on Bioethics and Margaret Sommerville

Udo Schüklenk is a Professor of Philsophy at Queen's University in Kingston, Ontario, Canada. His specialty is bioethics.

Udo gave a presentation at Eschaton 2012 on Myths About Atheist Values. He covered three topics ...

1. Are atheists moral? Yes

2. Does life have meaning or purpose? No, not the same kind of meaning and purpose that theists imagine.

3. Do atheists value human life? Yes.

Udo has a blog and one of the services he provides on his blog is to teach us about bioethics. Part of this service is to expose quacks masquerading as bioethicists. It's a thankless job but someone has to do it.

Fortunately, Udo concentrates on Canadian quacks so you won't be overwhelmed. There are only a few hundred, mostly doctors.

Perhaps Canada's most famous quack bioethicist is Margaret Somerville, a Professor of Law at McGill University, (Montreal, Quebec, Canada). She's best known for her opposition to same-sex marriage and she's been advertised on television and in newspapers as a bioethicist who has rational views on the dangers of legalizing same-sex marriage. (She wasn't very persuasive since same-sex marriage is legal in Canada.}¹

Udo Schüklenk chaired an experts panel on end-of-life decisions for the Royal Society of Canada [End-of-Life Decision-Making in Canada: The Report by the Royal Society of Canada Expert Panel on End-of-Life Decision-Making].

Margaret Sommerville didn't like their recommendations. She claims that further legalization of euthanasia will lead to people being killed against their will.

Here's how Udo deals with that issue ...

Evidence has never been Ms. Somerville's strongest point. So, without any evidence to back up her claims she declares on the Catholic website, "One of the things that's wrong with respect to Justice (Lynn) Smith's judgment (in Carter v. Attorney General of B.C.) is that she purports to review the use of euthanasia and physician-assisted suicide in the jurisdictions that have legalized it. She said there is no problem, there is no slippery slope. Well, that's simply not right factually." It turns out, in our Report on end of life decision-making in Canada we reviewed the empirical evidence on the slippery slope matter and concluded that there is no evidence that assisted dying leads us down slippery slopes to unwanted killings. Of course, we reviewed evidence, Ms Somerville is in full preaching mode.

I like this guy! He thinks that real, scientific, "evidence" is an important part of any debate.

1. We're anxiously waiting to see if her predictions about kids of gay parents being traumatized will come true.

The Ethics of Genome Analysis

Lots of people are having their genomes sequenced or otherwise analyzed for specific alleles. Those people should get all the information that comes out of the analyses although, hopefully, it will be scientifically correct information and any medical relevance will be explained by experts.¹

There's another group of people who submit their genomes for research purposes only and they usually sign consent forms indicating that their name will not be associated with the results. Under those circumstances, the researchers should never have access to the individual's name or any circumstances that are not relevant to the study.

Apparently that simple ethical rule is not always standard practice. Gina Kolatea writes about some ethical issues in the New York Times: Genes Now Tell Doctors Secrets They Can’t Utter.

Here's an example from her article ...

One of the first cases came a decade ago, just as the new age of genetics was beginning. A young woman with a strong family history of breast and ovarian cancer enrolled in a study trying to find cancer genes that, when mutated, greatly increase the risk of breast cancer. But the woman, terrified by her family history, also intended to have her breasts removed prophylactically.

Her consent form said she would not be contacted by the researchers. Consent forms are typically written this way because the purpose of such studies is not to provide medical care but to gain new insights. The researchers are not the patients’ doctors.

But in this case, the researchers happened to know about the woman’s plan, and they also knew that their study indicated that she did not have her family’s breast cancer gene. They were horrified.

This is a rather simple case of the researchers violating a standard protocol. They should not have known the identity of the patient and they should not have known what she intended to do.

Most of the "ethical problems" in the article are of this type. They involve researchers who are supposed to be concentrating on research and not on the treatment of individual patients. Those researchers have no idea whether the patients already know which alleles they carry or whether they are already undergoing medical treatment. That's just as it should be. If a DNA donor doesn't want to be contacted then it's ethically wrong for the researchers to violate that contract no matter how justified they think they are being. Furthermore, it should be impossible for them to find out the name and address of the donor so the issue should never come up.

John Hawks thinks this is an interesting ethical problem and he wants his students to discuss it in his classes [Grasping the genomic palantir].

That case is ethically straightforward compared to others, because the researchers could make a difference to an immediate medical decision. On the other hand, how many risk-free research participants went ahead with prophylactic mastectomies because researchers didn't know about their plans?

I think the article will be a good one for prompting student discussions in my courses, and I'll likely assign it widely. But I think the central ethical problem discussed in the article is temporary.

What will students learn from discussing issues like these? What controls are in place to make sure that students are informed about all the ethical issues? Will they be told that standard scientific protocols were violated once the researchers knew what the patient intended to do?

1. "Experts" do NOT include employees of any for-profit company that took money for sequencing the genome.

Guns and the Moral Law

From MSNBC and Associated Press: Police: Teen shot dead after Halloween prank.

ATLANTA — Authorities say a driver enraged after his Mercedes was splattered with eggs on Halloween fatally shot a 17-year-old in the neck and leg as the teen tried to run away.

Atlanta police spokeswoman Kim Jones says the driver confronted the teen and fired 10 shots at him around 8 p.m. Sunday. The Fulton County Medical Examiner's office says the teen, Tivarus King, died as he was being taken to Grady Memorial Hospital.

Just keep repeating to yourself, "Guns aren't the problem, criminals are the problem."

The real problem is that if you give a gun to a Mercedes owner in Atlanta he can soon become a criminal. (Ten Shots!)

[Hat Tip: Greg Laden]

How to deal with scientists who cheat

What do you do when a scientists (PI, post-doc, graduate student) is caught falsifying data? Should they be expelled from the community, fired from their job, or given a slap on the wrist and rehabilitated?

This isn't an easy question as Janet Stemwedel demonstrates in Tempering justice with mercy: the question of youthful offenders in the tribe of science. I hate it when she does that. It would be so easy to conclude that cheating scientists should be drummed out of the profession but then along comes Janet to confuse me.

She's right, of course. There ought to be a range of punishments that fit the wide range of crimes and motives.

Vaccine refuseniks are free-riders

There are some really interesting ethical issues associated with vaccinations. The advantages of vaccination benefit the entire community (the "herd") but not necessarily the individual. If everyone is vaccinated then one person can opt out without a great deal of risk. They get the benefit but don't pay the cost. They get a free ride.

Janet Stemwedel is interested in these ethical problems. Read what she has to say about those who refuse to vaccinate their children at Vaccine refuseniks are free-riders.

I wonder if there's a cultural difference when it comes to these kinds of problems? Are there some cultures who value the society more than the individual and others who value the individual more? If so, do they differ in the number of people who refuse to be vaccinated?

An Ethical Question

Eva Amsen was reading a book in a student study lounge when she was asked to participate in a survey [Spent - Review]. The question was ....

It was a short questionnaire about what you would do if you were standing in line at the post office for more than 30 minutes, waiting to mail a package, and someone offered to take you to the front of the line in exchange for $3. Would you pay the three dollars or keep waiting?

My answer is different than Eva's so this got me thinking.

See the poll in the left sidebar. What would you answer?

Is there a "right" answer?